This makes sense to me as I had an infectious disease doc tell me years ago that the Parvo will affect every system in your body. A day or so later, my son developed the classic rash, and after his and my diagnosis was confirmed by the pediatrician, we discovered that the family we contracted it from had also had a Fifth’s Disease diagnosis. The rash is usually pretty distinctive – in my family we all looked like “lace” as it says in the books. fifth disease are usually mild and may include 1. fever 2. runny nose 3 So, then I start losing weight and feel like I’m turning into a walking stick figure. Parvovirus is particularly difficult to kill and the virus is programmed to attack the very cells … -Julie. Eliminating all. Maybe it’s because I had such a bad case of it. The pain is nearly all gone. I hope it doesn’t happen. I do have the beginnings of some artheritis in my hands and he did say I had a calcified tendonitis in my right shoulder. My mom thought I had cancer, my husband thought it was severe RA. When I went back the next week for results another doc said I have RA and OA and set me an appointment with rheumy. is easily solved though since I keep meeting people like you whose diagnosis is muddy. Probiotics and yogurt all the time without excuses will delay if not eliminate a huge amount of most peoples problems. That is often the story of RA. I am off to the doctors tomorrow because I cannot bare this anymore. Kelly received national acknowledgement with the 2011 WebMD Health Hero award. I do not test postitive for RV but fear that it is in my future. But now I have been faced with recovery from the surgery and nightmares. I originally contracted parvo about 10 years ago, which took 16 months to diagnose. He said he was sure he was right. Listen to Pharmaphorum interview Kelly about how pharma companies could better engage patients. It showed her what it is like. By the end of this week I have a long flight that I can’t cancel but I’m afraid to travel like this. My pain lessoned so that I would just use Aleve once in a while but it was still there and affecting my abilities to get things done. Also,it’s good for you to keep for your records & so you can have a more meaningful conversation. Normally, joint symptoms last only a couple of weeks. I don't normally think this much on summer vacation :0). I saw a movie today and the woman in the movie had a disease called Still’s disease with very similar symptoms. I had a well documented case of Parvo in 2004. By the way, my good friend kinda "gets" my RA to a point since she had the fifth disease. Herein, we report on two patients who developed … The incubation period is 4 to 14 days. There is also initially a distinctive rash on the trunk and limbs which looks a lot like lace. My test for Rheumatoid arthritis was negative. Vicki, might I ask what the “miracle” drug was? Very interesting, Kelly! Hmmm?someday, we'll get the research and maybe we'll know. No chocolate or chocolate flavored anything. Here’s to good health and very little pain and exhaustion! But 10 years ago or so, I contracted strep. I’ve lost two pounds in two days. Mine started with the same diagnosis as everyone else, the rash, the fever, etc. I constantly feel like I am coming down with something, but, does anyone get overwhelming, I'd say hot flashes, but they last longer and its over my entire body?, also this. I went to physical therapy to learn some exercises to strengthen my back muscles and get rid of the tendonitis. Not that anyone could have helped in any way even. My kids were easily diagnosed with the highly contagious “fifth disease” which is caused by human parvovirus. Indeed the literature I read even then suggested that because I had such a severe case, I might be at risk for developing actual RA later in life. Parvovirus often mimics Rheumatoid Arthritis, causing pain, stiffness, swelling, and disability. Thanks for replying! Hi, Now it’s 11 month since my last flare (my rheumy chalks that up to breastfeeding), and I’m starting to do more research. I’m 4 weeks in with debilitating joint pain and inflammation. It went ignored for 3 days by the docs because I didn't have any white spots on my throat. You’ll find hope, humor, and a helpful online community. Once referred to a Rheumatologist he spent over an hour wracking his brain trying to figure out what was wrong with me. I am wondering, what are your experiences with acupuncture? Crossing fingers that it will work! That is a lot of “coincidences” & I hope you can get to the bottom of it soon. Great now I have a diagnosis, it should subside in a few weeks…. Hmmm…??? The joint pain was severe and lasted for weeks/months, and appeared from that point onward to periodically re-flare. Even though Canine Parvovirus is highly contagious and often deadly, dogs can and do survive parvo. Some say virus, some say yeast, etc. Although parvoviruses commonly cause disease in animals, it was only in 1975 that the … They told me it was just a really bad sore throat. I’m Kelly & I’ll be glad to show you around if you’ll click right here. I hope that this gets better soon. The latest research suggests that it is not an isolated condition but just one more system in your body being attacked by whatever is causing your other pain issues. I was just recently diagnosed with RA in march. Thanks, and thanks to Kelly and all other posters on this blog. These will occur at changes of season--the hottest day when summer begins, and more sensitivity and flares with the extreme cold of winter. Parvovirus B-19 and Rheumatoid Arthritis: Who is the real fraud? It could be one of those “chicken and egg” questions. No tomatoes. It was caused by. It would be uplifting! My Doctor diagnosed me as having had Fifth’s, but when I saw a Rheumotoligist in February he said I had had fifth’s some time in my life but didn’t think it caused the joint pain I currently had. Thank you for this blog. Over a year later, I still am having problems with my hands and feet. Studies continue to examine whether parvovirus B19 could be one trigger for Rheumatoid Arthritis. Good luck & I hope it goes away!!! It is caused by infection with the parvovirus … Normally, cell death occurs even in healthy cells as a way of renewing old or damaged cells. The doc at the clinic was about 100 yrs. Approximately 60% of women who get B19 contract the sudden arthritis in multiple joints. However, during a microbial … I found out that Parvovirus B-19 is a virus found mostly in young children. Upward Fixation of the … Very Interesting. This summer seemed hopeful. I hope she never gets the RA. Its nice to know I’m not alone. I do have a copy of the report in front of me…not sure what to make of it though!! An infected person may be mildly unwell with a slight fever and “ cold ” symptoms which last for a few days, followed in most cases by an itchy rash. They paid me $500 for it! In children, it is often called Fifth’s Disease or erythema infectiosum. I commented in a post not too long ago that I was infected by Fifth's about 10 or so years ago. Last year myself , 35 , and my tow kids , 7 and 14, all got the human parvo virus. Hi Kelly! I was wrong! No im not in pain all the time, but when I do have “flare-ups” I’m pretty miserable. He had no joint pain or anything. I am teaching so not so broke we had a few fun family outtings planned. Time and this regime has cured me. Woo… some doctors when I tell them I have Parvovirus B19 they either give me the side eye or offer pain pills which I don’t want. I thought I would check back with an update. History Common symptoms of parvovirus B19 (B19V) infection include a mild nonspecific prodromal illness that may consist of fever (15-30% of patients), malaise, headache, myalgia, nausea, … Throw in joint health supplements Health food store and reputable probiotics with good fresh yogurt. If B19 were the cause of Rheumatoid Arthritis, 100% of RA patients would have had the virus. Researchers say they don’t know what causes human parvovirus, but I met a doctor once who says he does know. She created the hashtag: #rheum. Sometimes, a second or third opinion is needed. Four to 14 days after being infected with human parvovirus B19, a child may develop cold or flu-like symptoms, such as low-grade fever, fatigue and an overall feeling of ill health. My Dr. is re-doing some tests and added a few more. UGHH!My sister was jealous of my blood money. She is the president of the Rheumatoid Patient Foundation. I have a knee injury from three years ago and it seems that this is my main point of pain, second is my shoulders and then my feet. So, the following comment is for the benefit of others who may doubt us: IMAGINE you had to go through the rest of your life with with that pain that you had during the parvovirus AND the added benefit of repeatedly being doubted as many of us were by the doctor. A year or so later I was diagonosed with RA. Kelly O'Neill (formerly Kelly Young) has worked about 12 years as an advocate helping patients to be better informed and have a greater voice in their healthcare. For the longest time I had no idea what was wrong with me and all the doctors discounted Parvovirus for many months even thought is was the first and only thing I tested positive for right after coming home, but now I have a hunch that it may all go back to Parvo. First, with the arthritis symptoms; and then, with the “hysterical woman” diagnosis. I have been locked out of the account for months, it wasn’t accepting my pass word and would not let me change it. Because childhood rashes may be difficult to differentiate by appearance alone, it is important to consider the entire clinical presentation to help make the appropriate diagnosis. I think I must have picked up virus at the hospital as I have been coming and going for cancer treatments and body scans. detergent or body soap or such. but balance the gut system and you will stop the body from attacking itself. The parvovirus levels seem high, the nurse said the doc thinks I have a new onset of RA. What Cleaners Kill Parvovirus? This makes sense to me as I had an infectious disease doc tell me years ago that the Parvo will affect every system in your body. Thankfully my husband is very understanding and supportive. How? Throw in joint health supplements Health food store and reputable probiotics with good fresh yogurt. Some pages on this site contain affiliate links which provide a small commission to the site at no cost to you. Fifth disease is an illness caused by the parvovirus B19. See also https:/rawarrior.com/kelly-young-press/, Your email address will not be published. Parvovirus B19, also known as slapped cheek syndrome, is a common childhood viral infection which produces a bright red rash on the cheeks ('slapped' cheeks). My son had hand foot and mouth 2 months ago… but it’s possible he had fifths and was misdiagnosed. I work in a day care and I think I got it there. Or the ant-CCP? Has it helped the parvo? http://www.mayoclinic.org/diseases-conditions/interstitial-cystitis/basics/definition/con-20022439, Summer fun and not so fun – Surgery and ACUPUNCTURE, Artificial sweeteners (aspartame and saccharin). There is a counterfeit Rheumatoid Arthritis. People who are at risk of severe parvovirus complications might benefit from blood tests that can help determine if they're immune to parvovirus or if they've recently become infected. (Have a look in the Tagslist Dropdown at the top of this page. He did not know what had caused my pain but explored what we could do. Especially in my neck and shoulders. They are super good they didn’t got the virus. About half of adults are immune to parvovirus infection, most likely because of a previous, unnoticed childhood infection. We do have a group on FB that began about a year and a half ago, it’s called Adult Parvovirus B19 Sufferers, Caregivers and Researchers. Parvo Treatment – FAQ’s. Do the symptoms improve only to come back at a later date? I’m so sorry for the delay. but that is just the start. I also have found yoga to be a lifesaver. It is your gut that is the problem. Two months later I went to the docter b/c my joints were still swollen and VERY painful had fatigue something fierce. Can you get a copy of your labs so you can look at them? I had no clue what it was and struggled with pain for more than 2 weeks until I went to a rheum. Did you feel like he was trying to give you the "hysterical woman" diagnosis? Considerations include the appearance and location of the rash; the clinical course; and associated symptoms, such as pruritus or fever. I had a rash from my knees down but only 3 spots left. Cheers to everyone and be healthy! It has been 2 months since this started, I keep hoping it will go away but have read that it could stay now forever or come back intermitently. Mine started with the same diagnosis as everyone else, the rash, the fever, etc. And glad to have found this site. I am a 26 year old adult female who had a test positive for Parvovirus B19 last May. I have been using arthritis medicine daily for a very very long time now. The factory needs supplies and help. Of course, there is no one way to treat it, and there is no cure. My doctor recognizes a link and hoped it would clear up with me, it didn’t. This started the series of waiting for dates, having horrific night mare inspiring biopsy, waiting for results, while trying to heal from that invasion, getting results, needing surgery, along with another horrific invasive treatment, surgery having complications, long much more involved recovery,…the results were good. This is like a double blw for me…very scared, nervous..dont know what to do. Then I saw the … I always called it my "blood money". Fifth disease is caused by parvovirus. If you have any doubts about this dr’s conclusion, maybe you should consider a 2nd opinion. Well, as a rule summers are pretty lousy around here. http://www.mayoclinic.org/diseases-conditions/interstitial-cystitis/basics/definition/con-20022439 It is common among women who have other chronic pain issues, like fibromyagia, CFS, Parvo, though men can get it as well. My sister does not have RA but does take Celebrex on a regular basis for inflammation. Hahaha. I found out about this virus and in retrospect it would make sense (I even had a face rash during one of my early, more intense flares), but I don’t want it to be a situation where I’m believing “The Lie” 😉, I am at the end of my rope. No bread that has rye or sour dough, or preservatives or MSG. My preschool son and I had Fifth’s Disease about 11-12 years ago. They are supposed to be very specific to RA. However, in a small percentage of patients, they may last for several weeks to several months. The anxiety I am feeling over not being able to get any help and wondering if my body is deteriorating as I deal with this illness is so much to put up with. Answer Parvovirus B19 is a virus common in school age children particularly at this time of year. I just got my bloodwork back. It was not as bad as in the beginning but I am back on a shosrt course of prednisone to lesson it. resolve after a few weeks? dr. No, usually, it turns out to be one or the other – not 2 at the same time. My neck started to hurt, I was having burning sensations through my shoulders and down my arms, my ears were burning, I had a short stay in the hospital, once that cleared up I began to get joint pain again, not as bad as when I had Fifths Disease, but still achey and painful. I’m glad my doctor never gave up on searching for something that would help because nothing else worked. I am trying to find a specialist in this as no one has been able to help me and I really need help. The doctors there thought I was having some sort of allergic reaction of unknown origin and pumped me full of steroids, and stuck me on a brief course of prednizone. It is getting old though! every other autoimmune diagnosis given to me). Then he asks “have your kids been sick”? I’m not making this shit up. It is just over five months since my initial joint pain began. I still have flare ups. It might help you to read the Do I have RA? Probiotics and yogurt all the time without excuses will delay if not eliminate a huge amount of most peoples problems. Your email address will not be published. I recently found out that adult Parvovirus could present differently in adults than in children and not many doctors seem to be aware of it. The rash started at my feet and went all the way up to the middle of my stomach. Hi, I finally have a new GP who said, you are not having UTIs. The joint pain never went away, 18 months later they called it RA. wish I could find more people who have experienced the same problems and had positive results. It probably wouldn’t hurt to get a second opinion if its not a lot better soon because many people who have RA do not test postive with the current blood tests. oh yeah, it’s hard to get an appt because we don’t have enough rheum docs. CRP – 1.6(Normal) Julie, since you are such a good friend, I do know that while you do NOT have RA yourself, you try very hard to understand. I am taking many supplements and try yo improve with a no gluten, no milk products, no red meat, no sugar diet. They are not paid as much as other specialists from what I hear. No vinegar, soy sauce or tofu. He could not ignore the stiffness and swelling. Then the most apparent symptom, random myoclonic jerks and muscle fasciculations, (About 20 a min to start, now a year later, its more like 5 a day on a good day) started at which point I had to leave to go back to mainland America. I got pregnant in December, then 3 weeks before my due date I suddenly went into remission (about 11 months after onset). 22 years later and many doctors later no one can help me. Plus it’s a hard job. Parvovirus IgG – 0 I am at my end today. 🙂, I have the same thing its just a Matter of time when they find a cure. I have read all the postings on this website, and thought to share my experience over the past 10 years with parvo, in the hopes it will help someone else. I still want my money back from my fifth disease. What happened to you when you had it? There is often a rash on the face which is bright red. We are either moving, or not moving but broke. Parvovirus (PV) B19 is the causative agent of the childhood disease erythema infectiosum. I am sorry that you are hurting. In addition to RA Warrior, she writes periodically for newsletters, magazines, and websites. It was a very scary thing for me as I felt like I was elderly and I was only in my 20's. We had both unknowingly been exposed to a family with it, and I developed symptoms first, having terrible and sudden pain and swelling in multiple joints to the degree that my family took me to a diagnostic center. All that to say, my hands have never been the same. Several studies have been done to investigate whether parvovirus B19 is in any way connected with actual Rheumatoid Arthritis. it is not constant, but when it flares up… I am having pain as descrived in the article. I had the rash on my hands and arms that were lace like and the extremely painful joints. My kids were fine – just had a rash. It presents as a fever and a … See Kelly in a cartoon! However, in some adults, the infection ca… I was 40 at the time. I started having intermittent RA symptoms in September of 2010, and I had a good doctor that took it seriously and did the bloodwork immediately. I turned bright red head to toe and my joints swelled up and totally disabled me. Typical initial manifestations are nonspecific flu-like symptoms (eg, low-grade fever, slight malaise). They did a blood test and the titer was 10 times higher than they would expect to see in a positive. I’m now on day eight of going in for treatment with needles and herbal tea. You and your twin sister should be in a study somewhere! Journal after journal are publishing what has been known to some of us for a long time. Kelly: I had fifths disease 23 yrs ago, same symtoms as you, it lasted 2 months. I never have mentioned the rash to any doc. I had to end my term with the parks because I became ill there. Parvovirus B19 (B19V) is a small, non-enveloped virus that typically causes a benign flu-like illness that occurs most frequently in childhood. Did you read the blogs about RA -tests? There are some links to some posts about the blood tests. Human parvovirus B19 infection in patients with systemic lupus erythematosus. An association of PV B19 with chronic arthropathies, sometimes resembling rheumatoid … Just feels achy and unhappy, but never throw up. Fast forward to August 2013, I began a new hormone therapy and 4 days later my knees swelled. I do not think this mystery (whether there’s a connection?) Most of the time, Parvo does resolve on its own. For me, it was just like RA. A fever is likely to occur with roseola, erythema infectiosum (fifth disease), and scarlet fever. Kerr JR. Pathogenesis of human parvovirus … Do they just throw antibiotics at you, often needing a second round? Of course, there is no one way to treat it, and there is no cure. Her diagnosis helped me tell the doctor what to test for…he looked at me like I was an idiot and also looked carefully at the rash on my legs and said he didn't see it (obviously he was used to looking at very old, blotchy skin and didn't think mine was unusual). No fruit except blueberries and pears. Whether or not they will depends on the dog’s overall health and how early … Were the brain abnormalities there before the Parvo, and thus make us more susceptible to the virus? Nothing to drink but water. Hoping the best for you all. One of its most characteristic symptoms is a pink or reddish rash that appears on the face, usually on the cheeks and … nurse take her blood for more! BTW…we didn't!I do think a twin study would be quite interesting…maybe one day. I ended up having what the docs finally ruled as an allergic reaction to pennicillin. Thanks for putting the information out there! Parvovirus often mimics Rheumatoid Arthritis, causing pain, stiffness, swelling, and disability. In january I woke up one morning in such horrible pain, Managing Rheumatoid Arthritis: Weathering RA, 20 Rheumatoid Arthritis Patient Facts I learned from RA Patients, 20 Things Not to Say to a Rheumatoid Arthritis Patient. The first told me I had “tennis elbow”, the second said it was an arthritis flare-up, the third an Infectious Disease Specialist who said I’d had an infection, but he couldn’t say what, and the fourth a rheumatologist who finally diagnosed me with parvo. It is possible that the parvo antibodies are there from a previous bout with it? Patellar Luxation in Dogs Ranges in Severity. 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